ALS, also known as Lou Gehrig's Disease, is a progressive neurodegenerative disease that destroys the nerve cells that control voluntary muscle movement. The brain loses the ability to initiate and control movement in the arms, legs, chest, throat and mouth, resulting in an inability to eat, speak, move or even breathe. The ALS Foundation states, “Approximately 5,000 people in the US are diagnosed with this condition every year.” “There is no known cure to stop or reverse ALS.” Symptoms can occur at any age, but usually begin around the ages 55 to 75 and progress gradually. Muscles involving speech and swallowing are generally affected first, followed by muscles in the hands and legs, although the sequence of the on-set of symptoms can vary from person to person. There are treatments for ALS, but there is no known cure.
Proper management of symptoms and proactive use of medical interventions and equipment can make a positive difference in day-to-day living and quality of life for people with ALS by assisting with breathing, nutrition, mobility, and communication.
Physical Therapy & Exercise
Some doctors have said that the average life span is between 1-3 years. Please note, we have taken care of a number of ALS patients. One person we cared for close to 20 years, and he had ALS for close to 30 years. The secret is having the right care, and the necessary equipment when needed, such as vents, traches, and tube feedings, they can live a long time. The ALS patients we’ve had were all very strong willed, they expressed what they wanted to have, and they all wanted control of their own lives. Although they may be paralyzed and can’t speak, they can make known their demands. They all have a strong will to live.”
There is one thing we have done, that probably no other agency would do, is when they go into the hospital for a stay, due to an infection or for any reason, we know the insurance company will not pay for Private Duty Nursing while they are in the hospital. We know the necessity of having their own nurses on hand, because they may not have their machines that do the talking with them. They need to have someone communicate with them and understand what they need and/or want. We have their nurses in the hospital with them, free of charge to them, at our expense, even though we are aware that the insurance company won’t pay for it.
16133 Ventura Blvd Suite 900
Encino, California 91436
CA Licensed HCO #194700256